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What is the Australian Bleeding Disorders Registry

The Australian Bleeding Disorders Registry (ABDR) is a clinical registry for patients in Australia with bleeding disorders.

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How to access deidentified data from the ABDR for research purposes

You may request access to de-identified data from the ABDR for research purposes by making a written submission to the ABDR NBA Secretariat indicating the data required and the purpose for which it will be used.

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Important Information for Clinicians

Australian governments have funded the redevelopment of the ABDR to provide a clinical tool for specialist staff in designated treatment centres and clinics and to improve treatment outcomes for patients with bleeding disorders across Australia.

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