What is the Australian Bleeding Disorders Registry

The Australian Bleeding Disorders Registry (ABDR) is a clinical registry for patients in Australia with bleeding disorders.

How to access deidentified data from the ABDR for research purposes

You may request access to de-identified data from the ABDR for research purposes by making a written submission to the ABDR NBA Secretariat indicating the data required and the purpose for which it will be used.

Important Information for Clinicians

Australian governments have funded the redevelopment of the ABDR to provide a clinical tool for specialist staff in designated treatment centres and clinics and to improve treatment outcomes for patients with bleeding disorders across Australia.