AHCDO Clinical Advisory Committee

Chairperson: Dr Susan Russell

Members:

• AHCDO Director Members

• AHCDO Associate Members

• AHCDO ABDR Senior Research Fellow

• AHCDO Executive Officer

• ABDR Data Managers Group Representatives

• AHNG Representatives

AHCDO Clinical Advisory Committee Terms of Reference

AHCDO Associate Members are welcome to join the Clinical Advisory Committee for discussion of complex treatment options.

Other medical specialists are welcome to join the meeting once approved by the Chair. Please register below and the videoconference link will be sent to you.

The AHCDO Clinical Advisory Committee (CAC) meets Quarterly by videoconference - link is located in your calendar invitation

2025 Clinical Advisory Committee dates

1-2025    Friday, 14 March 2025 at 2:00pm (AEDT) (Note: changed from 14 February 2025)

2-2025   Friday, 9 May 2025 at 2:00pm (AEST) FOCUS TOPIC = Data Management

3-2025 Friday, 13 June 2025 at 2:00pm (AEST) Discuss ABDR Bleeding Disorders Dictionary (meeting added 20 May 2025)

4-2025   Friday, 15 August 2025 at 2:00pm (AEST) FOCUS TOPIC = Acquired haemophilia update

5-2025   Friday, 14 November 2025 at 2:00pm (AEDT) FOCUS TOPIC = Genetic Testing (focus on Haemophilia A and B)

1-2026 Date TBA February 2026: FOCUS TOPIC – Transition from paediatric to adult HTC

2-2026 Date TBA May 2026: FOCUS TOPIC - Emicizumab – breakthrough bleeds / surgery / dialysis

Please contact AHCDO Executive Officer for any further information.