Links to resources
Australian Government
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The National Blood Authority is a statutory agency established by the National Blood Authority Act 2003 (Cth). We operate to achieve the policy objectives outlined in the National Blood Agreement.
NBA manages and coordinates arrangements for the supply of blood, blood products and blood services in Australia. Under the national blood arrangements, our role is to deliver an uninterrupted supply of blood and blood products to Australians in need.
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the Medical Services Advisory Committee (MSAC) is an independent committee appointed by the federal health minister. MSAC advise the government on public funding for health services and technologies.
Australian Patient Support Organisations
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"Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders, and their families."
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The Thrombosis and Haemostasis society of Australia and New Zealand represents over 300 clinicians and scientists committed to promoting and fostering the acquisition and diffusion of knowledge and ideas relating to normal and abnormal haemostasis. The Society serves as a forum for bringing together a broad array of disciplines which relate to bleeding, thrombosis and cognate fields.
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"The Australian and New Zealand Children’s Haematology/Oncology Group (ANZCHOG) is a non-profit organisation, committed to ensuring Australian and New Zealand children and adolescents receive world-class cancer care.
[They] are the peak professional body for paediatric oncologists and health professionals who care for children with cancer, spearheading national initiatives to enhance communication, networking and education.
ANZCHOG is also the national cooperative clinical trials group for childhood cancer, actively working with trial consortia around the world to ensure Australian and New Zealand children have the opportunity to access the latest promising cancer treatments."
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The Haematology Society of Australia and New Zealand came into being in 1998 after the amalgamation of the Haematology Society of Australia and the New Zealand Society for Haematology.
The Purpose of HSANZ is to lead, communicate and support excellence in haematology through independent education, professional development and advocacy
International Medical Associations/Societies
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"The European Association for Haemophilia and Allied Disorders (EAHAD) is a multidisciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders. Its members include haematologists, internists, paediatricians, nurses, physiotherapists, laboratory scientists and researchers from across Europe.
Since its establishment in 2007, EAHAD has worked to improve the situation of people living with haemophilia and other bleeding disorders."
The European Association for Haemophilia and Allied Disorders website
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"The International Society on Thrombosis and Haemostasis (ISTH) advances the understanding, prevention, diagnosis and treatment of conditions related to thrombosis and hemostasis.
The Society is dedicated to transformative scientific discoveries and clinical practices, the development of young professionals and the education of physicians, scientists and allied health professionals wherever they may live."
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"The World Federation of Hemophilia (WFH) is a non-profit organization dedicated to improving and sustaining care for people with inherited bleeding disorders around the world.
We work in partnership with healthcare providers (HCPs), governments, and our global network of national member organizations (NMOs) in 152 countries. We provide our NMOs and healthcare providers with the knowledge and tools they need to identify, support and treat people living with bleeding disorders in their communities, while promoting global advocacy and collaboration to achieve our common goals."
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"Haemophilia Treatment Centres (HTCs) are centres caring for persons with Haemophilia. There is a wide network of Haemophilia Treatment Centres around the Asia Pacific countries, regions and territories with expertise in different aspects of haemophilia care."
"AHAD-AP has been putting the effort to list down the HTCs and its basic information across the region. We believe that the directory as a tool will be vital for both the health care provider and the patient. The directory is compiled and updated from various sources and AHAD-AP is grateful to all who have given their input in compiling and updating the directory of HTCs."
International Patient Support Organisations
International Treatment Centre Directors’ Associations
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"The Association of Hemophilia Clinic Directors of Canada (AHCDC) is an organization of Hemophilia Clinic Directors from across Canada, incorporated under the laws of the Province of Ontario in 1994. We share a common interest in improving the treatment of people with hemophilia. The association meets once a year, often in conjunction with the Canadian Hemophilia Society (CHS)."
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"The United Kingdom Haemophilia Centre Doctors’ Organisation is an association of medical practitioners who work within the Haemophilia Centres of England, Scotland, Northern Ireland or Wales; and have an interest in the care of people with Haemophilia or other inherited bleeding disorders"
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